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Any experience with adenomyosis (+endometriosis)?

  • Sedna
  • February 22, 2026 at 5:46 PM
  • Sedna
    Eizelle
    Posts
    2
    • February 22, 2026 at 5:46 PM
    • New
    • #1

    Hello lovelies,

    I'm here looking for some hope as I'm the only one around me with these conditions while everyone around me (except my sister) is getting pregnant.

    I am 35 years old and had endometriosis removed in September. There was a focus in the Douglas space and an incipient focus on my left ovary. Both were successfully removed. During the preliminary ultrasound scan, it was noted that I most likely had adenomyosis as my uterus was bent like a question mark. No one could really verify this because they said that you would have to open the uterus for this. Of course, nobody does that if you want to have children.

    I don't know if you know this, but I've had problems with my period and the pain all my life. I've been on the pill since I was 13 and had to stop when I was about 19 because I got a tumor from it. When I stopped taking the pill, the tumor receded, my period got worse and at some point I took the pill at my own risk after the tumor could no longer be found. I just couldn't stand the pain any longer. I always had pain a week before my period, then my period, then again around ovulation. So usually 3 out of 4 weeks in the cycle.
    Fun fact: I once had a hormone IUD, which was bent and removed again.

    Since the laparoscopy, my period pain has gone, but I have pain for most of the rest of the month. The bleeding feels a little worse. We are now in our 7th practise cycle, the 6th after the operation and I know that the chances are at their highest right now, but we are simply not getting pregnant. I tried reading ovulation tests at the beginning, but failed miserably at interpreting them, so I switched to the Clear Blue Monitor. However, peeing in a cup every morning for about 9 days and actively thinking about what we're doing is really stressing me out. So I'm trying to take the stress out of it by not doing that anymore and spacing out the days a bit.

    Cycle 6, which I'm currently in, is going pretty crap so far. Immediately after my period, I started bleeding again 3 days later, for just under a week. I also have to say that my libido isn't exactly the highest with all the pain that keeps reminding me of everything. Our sex life is therefore a little more calculated than that of other couples.

    Why am I writing all this? Actually, I'm just hoping to meet like-minded people or people who can encourage me with their story. I have an appointment with my gynecologist next week and we have an appointment at the KiWu clinic. One of the reasons why we planned to get married earlier is precisely because we knew that we might have to go to the KiWu clinic. Especially with my illnesses, my doctor said that you have to start looking from cycle 6 onwards.

    I am insecure and scared and have no one to talk to. The KiWu clinic doesn't take the stress out. I'm just afraid that I'm infertile. That it will never work.

    I would appreciate a few answers.

  • Kordsofa
    4-Zeller
    Reactions Received
    41
    Posts
    67
    • February 22, 2026 at 9:27 PM
    • New
    • #2

    Hello Sedna,

    I found out about my adenomyosis when I had a fibroid removed. My KiWu treatment is still ongoing.
    Perhaps they can help you with this at a KiWu clinic? There may be other reasons why it's not working for you at the moment.

    Good luck 🍀

  • Sedna
    Eizelle
    Posts
    2
    • February 26, 2026 at 11:56 AM
    • New
    • #3

    Hello Kordsofa,


    Thank you for your reply. I got my referral for the KiWu clinic today. Let's see where the journey takes me.


    As a small update: the bleeding in between is a 4 cm cyst :/

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