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Letting go - how did you manage it?

  • LiniBini
  • September 16, 2024 at 5:41 PM
  • Jam76
    8-Zeller
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    • September 30, 2024 at 8:30 PM
    • #21

    Yes, that's what she told us at our first interview ;)

    12.04.24 EZS in Prag, 3 Blastos - eine AA transferiert

    21.04.24 positiver Urintest <3

    21.06./27.08.24 1. und 2. Pränataldiagnostik: alles gesund und zeitgerecht <3

    24+2: 660g und 30 cm :love:

    28+2: 1.180g und 36 cm <3 bisher nichts vom Schwangerschaftsdiabetes beim Baby angekommen:folded_hands:

  • LiniBini
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    • October 21, 2024 at 6:15 PM
    • #22

    Hello lovelies,

    I apologize for only getting back to you now - events have come thick and fast over the last week. We are allowed to fly to Malle at the beginning of November and are combining the fertilization and transfer appointments with a vacation, which we both really need after this very intense summer... Now we have a few blood tests and an ultrasound to do and then it's time to soak up the sun, relax and enjoy good food - so that we can hopefully fly home for three.

    But you were right: now that things are getting concrete, I'm only looking forward to November and I'm really looking forward to getting to know the local team (we're being treated by Dr. H. - very friendly and direct).

    So much weight has been lifted that I've been lying flat for a while and am still struggling with the after-effects :D But I don't think that's going to stop us.

    I'll keep you up to date. Thank you for your support!

  • Lalelu22
    Blastozyste
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    • October 21, 2024 at 9:44 PM
    • #23

    Good luck, hold on tight and have a great vacation! 😘💪🏻

    Jg. 75

    Neuer Partner 2019

    KiWu 2020

    💍 und SET 9/21

    BT 16.9.21 positiv (Hcg 166), 1.10.21: biochem SS

    KET 1.12.2021 - negativ

    1. TF mit neuer Spenderin: 1.2.2022

    T+5/T+7: Urintest positiv 🥰

    BT 10.2.22

  • JulianeCharlotte
    Eizelle
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    • October 22, 2024 at 10:31 PM
    • #24

    Oh how wonderful!!!

    I wish you only the very best and that you are on the plane back home for 3!!!!

    Good luck and have a wonderful and relaxing vacation ♥️🤗

  • LiniBini
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    • November 4, 2024 at 8:49 PM
    • #25

    Hello lovelies,

    I had my last ultrasound today before we fly to Palma tomorrow. My uterine lining seems to have built up well but I'm bleeding and it looks like the lining is shedding. The cycle is probably over. We are trying an increase of Progynova and on Wednesday we will have another scan on site but it doesn't look good.

    We will have the insemination done and freeze the blastocysts to hopefully have more luck in the near future...

    Best wishes - I'll keep you up to date...

  • Fliege
    Blastozyste
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    • November 4, 2024 at 9:29 PM
    • #26

    Oh no, how annoying! I was really afraid of that because it happens really often in my cycles. But luckily I was spared that when it really mattered.

    Stay strong and don't be too sad:(

  • Kiwi-89
    Eizelle
    Posts
    3
    • December 25, 2024 at 11:15 PM
    • #27

    Hello everyone,

    I'm new here and have been reading through the topics over the last few days.

    This topic of saying goodbye to my own DCs is also really bothering me at the moment.
    The last few months have been very chaotic and nerve-wracking for us. I have a genetic defect and if I pass it on, my child will have a serious disability. We started the first stimulation in October to collect egg cells for PGD, unfortunately zero fertilization. Our KiWu in Germany probably "forgot" to inform us that my AMH value of 0.8 doesn't match our plans very well. I am 35.

    So we were forced to look around for alternatives and got stuck with EZS (which would also cancel out the genetic defect). However, I'm realizing more and more every day that the situation is really stressing me out and everything is happening too quickly.

    Do you have any tips for me on how to say goodbye to my own DC better?

    Nevertheless, we had an initial consultation on DCS yesterday at IVI Mallorca (Dr. N). I would therefore like to ask LiniBini what the current status is for you (hopefully positive) and whether you are still satisfied?

    I wish you happy holidays and look forward to hearing from you.

    Kind regards Kiwi

  • LiniBini
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    • December 26, 2024 at 11:18 AM
    • #28

    Dear Kiwi,

    I'm very sorry to read this and I can well understand how you feel. Admitting your grief and (impatiently) looking forward at the same time was and sometimes still is a balancing act. Although our first attempt didn't work out, I'm currently feeling very good. Maybe some of my strategies will help you?

    We went to Mallorca for about a week at the beginning of November and combined the fertilization part with a vacation until the transfer. This was helpful for me because it gave me a positive feeling about the country of origin of "my" eggs.

    I also created a kind of diary for our future child. In it, I explained everything we had tried, what the diagnosis was like for me, my thoughts on the EZS and the anonymity of the donor, pictures, invoices, medical documents... everything goes in there to be as transparent as possible. This also helps me to process the process.

    I personally think Ivi is a great practice. We are seeing Dr. H. She is a very positive doctor who looks to the future. That helped me personally and infected me, because she didn't respond to my "whining", but said that we can't change the past but are now looking to have our child.

    We received a video from the clinic showing how our eggs were developing. And from that moment on, they were "my babies"...

    Unfortunately, it didn't work the first time. I'm having a hysteroscopy in January as a precaution before we start another transfer. But the video and the diary help me to stay positive.

    The thought "who knows what it's good for" may sound trite, but how often has a difficult situation turned out to be a blessing afterwards? Has it turned out positively? Created something wonderful? Today I think that all of this is true. It has given me an incredible amount of depth with my husband, the feeling that he stands by me through everything, a lot of support and I have learned that love has nothing to do with DNA.

    When feelings like sadness or anxiety come up, I allow them to. I don't push them away, but I don't lose myself in them either. In the final scene of the movie Kevin Alone at Home, I cried endlessly because I wanted to hold my child in my arms too... I'm not "artificially strong", but think that these emotions are justified and can be felt.

    Talking to close friends and family also helps me. I would like to be able to be more open here and also respond to curious questions such as "and when are you due?" respond differently and explain things to people, but sometimes I think that it's not my origin story and I don't really have the right to tell everyone, even if it would do me good...

    For a long time, the focus was on the desire to have children. Vacations, plans for the future, etc. Were always forged with the thought of "what if I get pregnant". This put my life on standby. Today, the focus is on me. I take good care of myself, plan time off, build up my independence and live as if the desire to have children didn't exist (within my financial means, the costs for the clinic should of course be realistically taken into account...)

    I don't know about you, but I also put a lot of pressure on myself because of my age. I'm 36.5 and would like my child to get to know his grandparents, for example, so that I can cope with the sleepless nights etc. But I try to ignore all these thoughts, the additional stress intensifiers. I can't influence it and it will be what it will be... So my advice would be to take and allow yourself the time you need to process everything ❤️

    If you have any questions, please get in touch. I wish you all the best on your journey, whatever it looks like in the end.

    LG

    Lini

  • Kiwi-89
    Eizelle
    Posts
    3
    • December 26, 2024 at 1:55 PM
    • #29

    Dear Lini, thank you for your detailed answers. I would like to stay in touch with you (can you also communicate via PN here?) and keep my fingers crossed that your second transfer works out. How many Blastos do you have? And have you taken out a warranty package?


    When I read the long stories of all the brave women here, I immediately feel bad about my whining. We haven't actually tried much yet, which is why I don't think my path to EZS is paved yet. However, the time pressure you described does play a big role for me. You don't want to invest too much time, energy and of course money in something that is doomed to fail just because you absolutely want to hold on to your genes, which unfortunately aren't that "healthy" in my case either.

    Then there are also all the thoughts about how the child might deal with its history at some point, especially with an anonymous donation-good or bad? Do you come clean or not...? So many questions that have to be put in order first. By the way, I think the idea of the diary is great.

    Best regards Kiwi

  • LiniBini
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    • April 17, 2025 at 12:53 PM
    • #30

    Hello everyone,

    I've been a bit withdrawn lately and have been concentrating a lot on myself. That's why I'm only now posting an update :)

    In January I had a hysteroscopy and the result was that I had an acute inflammation in my uterus and chronic + acute inflammation in my cervix.

    I then had an antibiotic therapy and subsequently rebuilt the vaginal flora over a period of months. Orally and vaginally.

    To combat the chronic inflammation, I changed my diet, fasted, took anti-inflammatory supplements and did more sport.

    I also had two dental operations (due to a cyst, among other things).

    We then used an artificial cycle to build up the mucous membrane once and let it bleed off (spring cleaning ;)).

    In the second cycle, the mucosa was built up to 7.5 and last Friday our 2nd transfer (blasto, 5 days) took place under top conditions in Spain. Hormone levels, blasto, mucosa... all very good.

    Now we have to wait. I feel very bloated and a little nauseous, otherwise I'm doing great. I really enjoy the fact that I can sleep through the night again since the hormones.

    BT is only after Easter. On a working day... I am therefore considering whether I should perhaps test at the weekend to prepare myself for a possible negative result... I think it's a fine line between hope, a positive attitude and fear of what will happen if the test is negative. Financially, we have very little room for maneuver...

    Kind regards

  • Conby
    Blastozyste
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    • April 17, 2025 at 1:18 PM
    • #31

    Dear LiniBini, first of all, congratulations on the transfer. Fingers firmly crossed.

    I also always tested at the weekend before the BT because I would have preferred to cry at home about a possible negative than get a call like that at work. However, both times I felt it before the test that it had worked. My first Tf was also on a Friday and on the Saturday of the following week, one week and one day after the TF, I was incredibly hungry all day. No matter when I had last eaten. The second time I had this already 4 days after TF. However, I know my body really well. And every SSf is different. Some don't feel anything and still test positive. Ultimately, you have to wait until a test gives a reliable result. I tested on Sunday morning with morning urine because then it was clear that it had to show today, otherwise it would be negative. It was a 10 test. I am happy to recommend the pink Presense.

    I wish you all the best and keep my fingers crossed that a little miracle has snuggled up with you and that your efforts over the last few months will be rewarded.

    BJ 1982, AMH 2020: 0,2. Partner: OAT Syndrom.

    1xIUI 08/20 neg. 1x TF nach ICSI 11/20 neg. Danach nur noch Nullbefruchtung und zweimal Nullpunktion.

    08/21 Erstvisite KIWU in Madrid.

    Transfer einer wunderschönen 6AA Blasto am 25.3.22

    Urintest 3.4. Positiv

    BT 5.4. : HCG 570 :love:

    US 22.04. Das Herzchen schlägt <3

    Es wird ein Mädchen :smiling_face_with_hearts:

    Dezember 2022 Geburt unserer wundervollen süßen Tochter :smiling_face_with_hearts::heart_with_ribbon:

  • LiniBini
    2-Zeller
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    • April 19, 2025 at 7:48 AM
    • #32

    Good morning,

    Dear Conby, thank you very much for your kind words. I tested negative this morning (on Tf +8).

    At the moment I feel like I'm in a state of shock. I don't even want to think about the financial implications etc. I don't even want to think about it. BT would actually be on Monday, but can only be done on Tuesday due to the holidays...

    Fortunately, I have a lot of distractions on the agenda now.

    I wish you all a happy Easter!

  • Conby
    Blastozyste
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    • April 19, 2025 at 7:22 PM
    • #33

    Dear LiniBini, I am very sorry. Was it a 10 test? I would definitely have the BT done anyway, just so that you know whether there was any implantation or not. Did you have the embryos PGT-A tested? Oh man, I can understand that you feel like you're in shock right now. Give yourself a big hug :people_hugging:

    BJ 1982, AMH 2020: 0,2. Partner: OAT Syndrom.

    1xIUI 08/20 neg. 1x TF nach ICSI 11/20 neg. Danach nur noch Nullbefruchtung und zweimal Nullpunktion.

    08/21 Erstvisite KIWU in Madrid.

    Transfer einer wunderschönen 6AA Blasto am 25.3.22

    Urintest 3.4. Positiv

    BT 5.4. : HCG 570 :love:

    US 22.04. Das Herzchen schlägt <3

    Es wird ein Mädchen :smiling_face_with_hearts:

    Dezember 2022 Geburt unserer wundervollen süßen Tochter :smiling_face_with_hearts::heart_with_ribbon:

  • LiniBini
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    • April 19, 2025 at 11:43 PM
    • #34

    Dear Conby,

    Thank you again. Yes, it was a 10 and concentrated morning urine. I have to wait until the BT for the KiWu to give the go ahead to stop the meds.... but I'm no longer hopeful.

    Only then can we talk about whether and how to proceed. We haven't had any further tests done on me or the embryos yet. There will probably be further costs for us here too.

    I am currently very disappointed. We were told by both Kiwu in Germany and Spain that the chances of success are very high. And I'm afraid that it might be the embryos after all. A new round with a new donor would simply not be possible...

    Kind regards

  • LiniBini
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    • July 26, 2025 at 7:27 AM
    • #35

    Hello everyone,

    The 3rd transfer was probably unsuccessful again. Today I tested clearly negative on TF + 9 (expanding blasto). The blood test will confirm it on Monday.

    I was so sure this time that it had worked... :(

    We only have one more blasto frozen. One try. To be honest, the hope that it will work at all has dwindled quite a bit.

    We're giving ourselves plenty of time to get back on our feet. Financially and emotionally. We've now cracked the 20,000 euro mark. Our last attempt will not take place in 2025.

    Kind regards

  • Ninusch84
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    • July 26, 2025 at 11:04 AM
    • #36

    Linibini, I am very, very sorry!

  • LiniBini
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    • July 26, 2025 at 11:18 AM
    • #37

    Thank you <3 To be honest, I am very angry and irritated right now. During the first transfer we were only told verbally that it was a very nice embryo. The second time we were told it was A quality. The lab reports for the current and last transfer suddenly say C1 quality. I only noticed this now, as no quality level was mentioned in the first lab report. My husband's spermiograms were always very good. Maybe he was unlucky with the donor

    I feel so fooled by doctors. A long history of suffering with many treatment errors made us go down the path of EZS. A lot of money, a lot of loss. The EZS was offered to us in Germany. And in Spain with very good chances and now we are where we are... with the feeling that we've been taken for a ride and lied to.

    The next conversation with the clinic will be clear....

  • Ninusch84
    4-Zeller
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    • July 26, 2025 at 11:39 AM
    • #38

    I can totally understand your annoyance! Personally, I also think that the EZS is sold a little too safely. It can happen that a donor doesn't work out, that few or no good blastocysts develop. The donor can also simply have a bad cycle. People are given the impression that a donor will produce a healthy child 90% of the time and that's that. Of course, this can work in many cases, but not with such a high probability. The quality of the blastos doesn't seem to have been that good either. For all that money, you can at least expect transparency and honesty. I'm curious to see what your clinic will say...

    I have only experienced one doctor in DK who was really honest and said that the probability of a live birth was not even 40% per transfer. More like 35%. I can deal much better with honest assessments. That also explains why sometimes it just takes more than 1-2 transfers.
    Give me a hug!

  • Conby
    Blastozyste
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    • July 26, 2025 at 7:00 PM
    • #39

    Dear LiniBini, I am very sorry that the 3rd TF was not successful. I would also be irritated by the lack of information about the embryo. Especially as I don't think C-embryos are used at all in some clinics! Did you have these 3 blastos? I know that it is controversial to do a PGT-A with egg donation and whether it has any advantage at all. But we had it done anyway and I had the impression that the clinic was possibly more committed to finding a suitable donor and also that the sperm analysis was very accurate and the selection was done with an extra device. We were guaranteed at least one euploid embryo. We then had 2 out of 3, one was not intact and was discarded.

    Do you want to stay at your clinic or are you thinking about changing?

    Either way, take the time and rest you need now to process the whole thing. Kiwi treatments with all their setbacks are so damn hard and unfair. I'm keeping my fingers crossed that a new path will open up for you that you want to and can take.

    BJ 1982, AMH 2020: 0,2. Partner: OAT Syndrom.

    1xIUI 08/20 neg. 1x TF nach ICSI 11/20 neg. Danach nur noch Nullbefruchtung und zweimal Nullpunktion.

    08/21 Erstvisite KIWU in Madrid.

    Transfer einer wunderschönen 6AA Blasto am 25.3.22

    Urintest 3.4. Positiv

    BT 5.4. : HCG 570 :love:

    US 22.04. Das Herzchen schlägt <3

    Es wird ein Mädchen :smiling_face_with_hearts:

    Dezember 2022 Geburt unserer wundervollen süßen Tochter :smiling_face_with_hearts::heart_with_ribbon:

  • LiniBini
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    • July 26, 2025 at 7:21 PM
    • #40

    Dear Conby, thank you very much for your words. I don't know how other clinics handle it, but according to the contract we have 2 blastos guaranteed. Nothing has been agreed about quality. I suspect that this is why C embryos are also used. We had a total of 4 blastos. I don't know the quality of no. 1, the remaining one, but I will discuss it with the clinic and confront them with the suspicion.

    We only have one blasto left. I assume that the quality is not good either, otherwise it would have been used sooner. A change of clinic or donor is no longer an option financially. The next transfer will be the last and, to be honest, I no longer have any hope. Maybe the positive thinking will come back but at the moment it's too exhausting for me... 😉

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